Thursday 25 October 2012

Our superhero


I have been fortunate to have received the opportunities given to me in life. I have traveled and seen much of the world, more so than most people my age would have seen. I have learnt though, that it is not where you go in life, but who goes with you. A spectacular moment is somewhat less magnificent if you don’t have a person to share it with. I am grateful that, this past year spent sailing, every spectacular moment has seen my family besides me.
The Jangles family
This blog post, however, is not going to based mainly upon the journeys of Jangles but upon a very brave family member across the ocean. Our cousin, Dylan, has Tourette's Syndrome. He has lived with it his whole life, progressively getting worse as he grew older. Now, only fifteen years old, he is going under a major operation to try and help with his Tourettes. On the 25th of October in Brisbane, Australia, my brave little cousin underwent brain surgery. This consisted of placing wires from the brain to two pacemakers, one located on either side of his stomach. This is meant to create waves to his brain to prevent ticks from occurring. With lots of prayer and hope, Dylan is busy recovering in the hospital from his surgery, which we were told went without a flaw. His ticks will not go away instantly but within a few months, they should begin to disappear. Our prayers and our thoughts are with Dylan and the entire Hartley family. . . your life has been a journey with ups and downs, but it has led you here, it has led you to this. Our hearts are filled with joy as we wait to see Dylan’s full recovery, and as we see your lives all change forever. Dylan, you are our superhero.
Dylan before the operation with his family

Dylan after his operation
As for the Jangles crew, we have finally left Trinidad and are now in Grenada. Below is a video about our time here so far


2 comments:

  1. Thank you for the up-date. Good luck and God bless Dylan. Please keep the posts coming.

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  2. Wishing Dylan all the best, a very brave young man! I used to teach a girl with Tourettes and she became my favorite student. She learnt to control a lot of her ticks by speaking a foreign language.

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